Here is the long short of it about why and what has been the reason for the hiatus.
I had been hired on in our local school district in 2016. I loved the work and my co-worker. I was there for almost 2 years. The job and being a mom and having a home business and all the other activities put the blog to the side. The start of my 2nd year, I noticed my back hurt more than usual and the hurt was different. My leg and toes also started to feel weird. After months of battling with insurance and tests and Dr appointments, I was diagnosed with Degenerative Disk Disease and arthritis. Common, yes, but not so in people so young. Neurology said it very likely could be the result of my connective tissue disorder. The thing is, back when I was diagnosed with the heritable connective tissue disorder around the age of 12/13, it was considered of no significant impact. In the recent years, it is being researched much more and we are finding out more all the time. We now are recently finding out it can have several other multi-systemic issues that are associated. Learning about it has opened my eyes about all the "odd" things that have I have been experiencing over the past years. Things that have been highly disruptive to my quality of life and the specialist's only answer was "I don't know". But WHY am I house bound because of bathroom issues, in severe pain, have palpitations all day, pass out when I stand up, get injured by just walking down the hall or washing my hair etc... ? And the list goes on with no answers until now.
Learn more about HSD and Ehlers-Danlos at www.Ehlers-Danlos.com.
I have "successfully" lived with this condition, I believe, because I had great advice from the doctor who diagnosed me all those years ago. I followed that advice and I believe it helped lead me to my degree in human physiology, health and nutrition. That gave me the knowledge to keep me at my best for as long as possible.
I describe this condition as if your body ages at an accelerated rate. Things just can't keep up and break down much faster. For some, it is very early. In summer of 2018 is when it started to really escalate for me and have a big impact on my lifestyle and work. Now, my body just can't take it all anymore.
I just don't know if this will be the last post or not. With the disability, I have very little time anymore. Travel is pretty much over for me. The time I have is spent just getting the basics of life in and as much local volunteer service as I can manage fit in.
Stay safe, make healthy choices, love each-other and don't take the good times for granted.
